Dr. Suzanne O'Sullivan
*****
The placebo effect occurs when a sick person receives a 'fake treatment' (like a sugar pill) and feels better anyway. It seems the mind can convince the body a fake treatment is the real thing.
The opposite is true as well. A person can exhibit ailments caused by their mind. Symptoms might include paralysis, blindness, headache, dizziness, coma, tremor, skin rashes, breathlessness, chest pain, palpitations, bladder problems, diarrhea, stomach cramps, or any other symptoms or disability one can imagine. This type of illness has been given many names over the years, including hysteria, conversion disorder, psychosomatic disorder, and functional neurological disorder (FND).
O'Sullivan observes that many people wrongly consider psychosomatic symptoms 'less real' than other medical problems She writes, "I struggle to see where this underestimation comes from....That the body is the mouthpiece of the mind seems self-evident to me, but I have the sense that not everybody feels the connection between bodily changes and the contents of their thoughts. So when a child becomes catatonic in the context of stresses....people are amazed and perplexed."
O'Sullivan became interested in childhood catatonia when she read a 2017 article about a 9-year-old girl in Sweden called Sophie. Sophie can't move, communicate, eat, or even open her eyes.....though medical tests show nothing wrong. Moreover, Sophie isn't unique. Other young girls in Sweden have fallen into similar catatonic states, suffering from a condition called 'resignation syndrome.'
A girl with resignation syndrome
The common factor among the resignation syndrome victims seems to be the fact that their families are asylum seekers. Sophie's family escaped persecution in Russia, and other catatonic girls belong to ethnic minorities like the Yazidi or the Uyghurs, who are oppressed in their home countries. If asylum isn't granted, the families will be deported.
Asylum seeking is a years-long process, and the families can feel like they're on trial....like they're being interrogated rather than listened to. O'Sullivan writes, "The asylum system seeks to find the mistakes that disprove an applicant's case, rather than looking for the evidence to prove it." O'Sullivan believes the children faced with possible deportation are under strain, and this induces the symptoms of resignation syndrome. Moreover, when granted residency the children usually wake up, albeit very very slowly.
Unfortunately many people look at psychosomatic symptoms as being 'fake' and untreatable. A physician called Dr. Olssen took O'Sullivan to visit two Yazidi sisters in Sweden - Nola (10) and Helan (11) - both of whom suffer from resignation syndrome.
Nola and Helan have resignation syndrome
O'Sullivan writes, "Dr. Olssen welcomed me because I was a neurologist. She hoped that I could find a [brain-related] explanation....that I would interpret the clinical signs and legitimize the girls' suffering and convince someone to help them. That Nola had been lying in bed for a year and a half without eating or moving had not been deemed impressive enough to get her the help she needed."
Oddly enough, though asylum seekers are found all over the world, resignation syndrome seems confined to Sweden, and affects only certain ethnic groups. O'Sullivan speculates the syndrome is not a biological or psychological illness in the Western sense, but rather a sociocultural phenomenon.
O'Sullivan goes on to write about additional sociocultural/psychosomatic illnesses, which manifest differently in diverse places and varying ethnic groups.
*****
The Miskito people indigenous to Nicaragua have outbreaks of a condition called grisi siknis, which appears as irrational behavior and hallucinations. Victims have been seen to have convulsions, foam at the mouth, rip off their clothes, run manically, hyperventilate, and break and eat glass. Miskito people don't believe grisi siknis is psychosomatic, but say it's caused by a spirit or demon that (usually) appears as a man.
Girl showing symptoms of grisi siknis
Boy showing symptoms of grisi siknis
*****
In the Kazakhstani cities of Krasnogorsk and Kalachi, many residents experienced a mystery illness that drove them from their homes. One victim, named Tamara, got sick at a community party. She tells O'Sullivan that she started to feel strange, light-headed and sleepy and had to leave the party early. Tamara then went home, went to bed, and didn't get up for a few days. Tamara recovered, but never went back to feeling as healthy as she had been before she fell asleep. Tamara was not an isolated case, and many people in the region experienced similar symptoms.
Kazakhstani woman with mystery sleeping sickness
*****
In 2016, an illness called Havana syndrome originated among Western diplomats in Cuba. American and Canadian State Department employees developed symptoms such as headache, earache, hearing impairment, dizziness, tinnitus, unsteadiness, visual disturbance, memory problems, difficulty concentrating and fatigue.
A woman with Havana Syndrome being examined by medical personnel
Most of the victims reported hearing a strange noise before their symptoms started, and speculation began that they had been subjected to a sound energy or sonic attack. The FBI and CIA looked high and low for traces of a sound weapon, but found none. Later, new victims appeared in China, and more recently in Serbia and India. Physicians aren't able to explain the sickness, and it appears to be a functional neurological disorder.
No sonic weapons were found
*****
In La Cansona, a region of Colombia, schoolgirls got caught up in a health crisis that began in 2014. The phenomenon began in a high school, when a group of girls - all in the same class - collapsed. Some just fell to the floor in a faint and some had convulsions. The condition spread quickly, and within a day, girls in several other classes got sick.
High school class in Colombia
By 2019, it was estimated that, out of 120,000 people in the area, as many as 1,000 girls had fallen ill. The villagers attributed the illness to an HPV vaccine administered years before, but doctors dismissed this as a cause.
*****
High school girls in Le Roy, a town in upstate New York, developed neurological symptoms in 2011. The manifestation began with a teenager name Katie Krautwurst, who woke from a nap to find she had developed involuntary movements and verbal outbursts reminiscent of Tourette's syndrome. Katie twitched and writhed and let out involuntary shouts. Katie's best friend Thera got sick next, and the disorder soon spread to other teenagers. Some victims had convulsions, others couldn't walk. Katie and Thera ultimately needed wheelchairs when the muscle jerks became so violent that they caused them to fall. Doctors could find no somatic cause and the girls were diagnosed with conversion disorder.
Katie Krautwurst was one of the first girls to develop neurological symptoms
A similar phenomenon occurred in Guyana in 2013, where the local people attributed the illness to 'Granny', the spirit of an old woman who lives in a cave.
*****
O'Sullivan discusses all these illnesses in detail, emphasizing that medical tests NEVER demonstrate a somatic cause and patients ALWAYS resist the idea they have a psychosomatic disorder.
O'Sullivan also goes on to discuss Western medicine vs. native remedies; attitudes of doctors to functional neurological disorders; the social stigma associated with having a 'fake' illness; the fact that psychosomatic disorders are attributed more often to females than males; her belief that people with psychosomatic disorders would improve with the correct treatment; the effect of the media on conversion disorders; the effect of culture and tradition on psychosomatic disorders; patients she's treated; and more.
The book is interesting and I liked the parts about O'Sullivan's travels; her interactions with people she met; victims she saw; foods she tried (like Colombian buñuelos (cheese donuts) and Kazakhstani mayonnaise soup); and more.
Buñuelos
Mayonnaise soup
On the downside, the narrative is somewhat repetitive and disjointed. Still, this is a fascinating subject and the book would probably appeal to readers interested in functional neurological disorders.
Thanks to Netgalley, Suzanne O'Sullivan, and Pantheon Books for a copy of the book.
Rating: 3.5 stars
